Hi! My name is Megan and I am a mother of two children with life threatening food allergies to Dairy, Wheat, Soy, Corn, Oats, and a beef allergy. Our daughter tests negative to Peanuts but reacts if ingested so we avoid them too. She also had the egg allergy but outgrew that already.
Not knowing anything about food allergies before, this came as a shock when our son was born with the dairy allergy. My husband and I were completely lost and had to figure things out the hard way. A lot of trial and error and many scary days with reactions. He was on a hypoallergenic formula, but every few months we were advised to try a milk based formula ( each time resulting in a reaction. Projectile vomiting, choking on mucus, and a very sleepy baby) His pediatrician at the time brushed off his allergy and told me it was probably a lactose problem and that he would be fine. At 16 months we finally got him into an allergist, and that’s when we found out how severe his allergy really was. From that day on we lived a dairy free life style. Almond milk, coconut yogurt, tapioca cheese, dairy free butter, and coconut ice cream.
Fast forward three years to when our daughter was born. I was told to add some dairy back into my diet while nursing. She started having stomach problems, very colicky, had rough dry skin, and was coughing up a lot of mucus. I recognized the symptoms of the dairy allergy and cut that out of my diet again. She continued to have stomach issues, not sleep well, and produce a lot of mucus, but was gaining weight and hitting milestones so her doctor wasn’t concerned. At six months we started oatmeal cereal which contains wheat. Within two hours she was projectile vomiting, choking on mucus and in a full blown reaction! Recognizing the symptoms I called the allergist and set up testing. She tested positive to Dairy, Wheat, Soy, and slight Egg.
Completely overwhelmed, we started making most things from scratch and thought we had everything figured out. That was until she was eight months old. Since Cheerios contain oats instead of wheat, I gave her a few. Two hours later she went into another full blown reaction and we ended up in the ER with an unresponsive baby. Back to the allergist we went. This time she tested positive for Oats and Corn. We still haven’t tested for all allergens so we are taking things slow.
*** UPDATE: Our Daughter is now 18months testing negative to many allergens yet having the same reactions. We believe she has the FPIES condition and will be seeing a GI specialist in the near future.
I started this blog to share our story, recipes, give advice as to what works for us, and maybe even get advice from others dealing with the same thing!
***This blog is about what works for us, not to tell you what to do or how to handle your families allergies! Always consult with your doctor first!***